シャノーラ・ハンプトンのインスタグラム(shanolahampton) - 11月29日 00時12分

This GivingTuesday please be a part of the cure and give the gift of life to young children born with Batten CLN6—a rare and fatal disease. Recently, donors like you have privately funded a gene therapy treatment that has the potential to save the life of every child born with this disease. So far, seven children, including the two darling girls pictured here, Charlotte & Gwenyth Gray have been treated through this FDA approved trial. The Charlotte & Gwenyth Gray Foundation is in a race against time. They need to raise $800,000 before the end of the year in order to enroll six other terminally ill children in this trial. Please join me in giving these young children the gift of a long life and support @curebatten by making a donation online at www.curebatten.org/donate today. #curebatten
If you make a donation online between now and midnight PST, you could be one of 12 lucky donors to receive a personal thank you call from me!

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