メリッサ・ジョーン・ハートさんのインスタグラム写真 - (メリッサ・ジョーン・ハートInstagram)「Today I am rocking my socks for @rockthesocksmakenzie! Mackenzie is fighting the good fight against the “worst disease you’ve never heard of” EB. More on that below... to watch this baby suffer in her own skin is unimaginable but she does it with a brave soul and a smile on her face most day. Follow her account and post your pic #rockthesocks4EB and spread the word to help stop this disease. Epidermolysis bullosa (EB) is a group of genetic conditions that result in easy blistering of the skin and mucous membranes. Blisters occur with minor trauma or friction and are painful. Its severity can range from mild to fatal. . . . @lislandstrong」3月27日 3時27分