アンナ・パキンのインスタグラム(_annapaquin) - 5月10日 03時02分

I recently connected with this brave young man @markytherock and his mum @melissa_2010 on Instagram. He is a fearless warrior living with #theworstdiseaseyouveneverheardof #eb #epidermolysisbullosa and you NEED to WATCH this video #Repost @specialbooksbyspecialkids
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Marky lives with epidermolysis bullosa, a disease that gave him a life expectancy of 13 years. His Mom, who already lost a son to the same condition, fears that Marky too will pass away. Marky wants his Mom to be happy when his time comes, reminding her to lean on her faith when he is no longer here.  Be Marky's friend at @melissa_2010.

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