ボブ・サゲットさんのインスタグラム写真 - (ボブ・サゲットInstagram)「Throughout this incredibly difficult time, still working to help those afflicted with scleroderma, the disease that took my sister’s life. Thank you to our beloved #SclerodermaResearchFoundation and our Chairman, Dr. Luke Evnin and his wife, Board member, Deann Wright as well as all of our board members and staff for helping us meet our Spring Challenge goal. Please see below and thank you. repost @srfcure ・・・ We did it! Many thanks to all of the SRF’s amazing donors who have so generously helped us raise more than $97,000, which together with our $75,000 match, equals at total of $172,000 raised for the Juvenile Scleroderma Project! This important project helps us better understand scleroderma in this vulnerable population and will give us clues about scleroderma in all patients. We are thrilled to have Dr. Kathryn Torok and the scientists at the NHGRI as partners in this endeavor! Again, thank you. Together, we will make a difference. Deann and Luke . . #srfcure #sclerodermaresearch #ResearchistheKey #sclerodermaresearchfoundation #scleroderma」7月18日 8時50分