マーク・シェパードさんのインスタグラム写真 - (マーク・シェパードInstagram)「#Repost @slsheppard ・・・ Stealing a quick moment. Moments like this can mean a lot to us. Lives are busy & stressful & we have 3 kids! But also there can be a moment, usually in the morning, when I have a bit of energy & am not in too much pain yet. Being the partner of someone who suffers chronic pain and/or illness is incredibly tough and demanding. It shifts the balance in a relationship from an equal partnership to what can feel like a patient/carer. The ‘carer’ can feel overwhelmed & resentful and quite often, relationships don’t survive this. Fortunately I have an incredible husband who takes it in his stride but that doesn’t mean there aren’t difficulties & low moments in our marriage. Discovering, and then becoming an advocate for @invisiblewavemovement has helped me by having an online community to reach out too to discuss my fears, concerns & goals of my chronic illness. Not having to ‘dump’ it all on my partner. Being part of Invisible Wave is an honour as I want to be part of the change in healthcare policy & awareness. I want to be more than just ‘a sick person’ or even, as can be my case, ‘Marks wife’ or worse ‘Marks sick wife!!’ I am excited to be part of a movement that means the world to me; and, like I am lucky enough to have in every other part of my life, I know I have my partners full support. #invisiblewave #chronicillness #chronicpain #invisibleillness #changinghealthcare #support #supportivehusband #thankyou」7月30日 4時10分