マックス・シエリオットさんのインスタグラム写真 - (マックス・シエリオットInstagram)「Father’s Day 2023 was incredibly special and a day I will always cherish. A perfect day of four wheelin and swimming with family and my friend here, Jett. At 5 years old he is so much stronger and far more courageous than I can even fathom. Shortly after birth, Jett was diagnosed with MPS 1 (hurler syndrome). He has gone through chemotherapy, bone marrow transplants, countless other surgeries, but through all of it has shown what it truly means to be a fighter. Even though he was still recovering from a recent surgery and unable to show me how he rides his dirt bike, his infectious laugh and amazing smile never ceased. Thanks for showing me what a real “fighter Jett” looks like buddy! Next time we will ride dirt bikes but then I think you need to ride in a fire engine! 🙏❤️ #mps1 #hurlersyndrome #findacure #fighterjett」6月29日 6時10分