ニューヨーク・タイムズのインスタグラム(nytimes) - 6月14日 13時05分

Every day, Nancy Darkoa worries about kidnappers. Her daughter Fransisca is among the approximately 2,000 Ghanaians who have #albinism, a recessive condition that drastically reduces the amount of melanin in the skin and can lead to problems like vision loss and skin cancer. To say that Ghanaians with albinism are stigmatized is an understatement: Some believe their body parts can bring fortune and prosperity, prompting people to kill them or traffickers to sell them for their body parts. Others believe their presence is a sign of bad luck. People in Ghana with albinism have been largely isolated from one another and unable to get the resources to help them battle the unforgiving sun and a world that thinks of them as disposable. But in recent years, they have forged connections on platforms like Facebook and WhatsApp, turning a societal stigma into social bonds and offline friendships. “It feels great to be a part of the albinism community now,” said Rejoice Ziwu, a nurse with albinism who’s also an albinism advocate. “I talk back to people when they say something about me now because I know even with my condition that I am beautiful and I can do anything.” Our visual reporter @mychivas took this photo of Francisca, a single mother, with her kids. Visit the link in our profile to read more about how the community is using Facebook and WhatsApp to maintain close ties.

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