アレックス・ロドリゲスのインスタグラム(arod) - 6月26日 07時43分
Big thank you to my good buddy Jerry Jones and the @dallascowboys for treating us to an amazing workout. We appreciate the hospitality and privilege of using your tremendous facility.
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[BIHAKUEN]UVシールド(UVShield)
ruideoliveiranunes
De: Aile Snitram
Data: 26 de junho de 2019, 23:23:43 WEST
Para: [email protected]
Cc: [email protected]
Assunto: Matilde, a special baby whose life depends on a 2,125 million dollar drug
Hi guys,
Hope this email finds you well (hopefully you’ll read it)
Two months ago, a very special babe was born - rare is the correct term, Matilde was born with SMA type 1, a rare genetic and fatal disease that affects the muscles, motor neurons die and eventually she’ll lose all movement capacity, she’s not able to hold her head, she does not have basic reflexes - such as primitive reflex, she has trouble breathing and swallowing, she’s already awaiting for Spinraza a gene enhancement treatment that is yet to arrive to Centro Hospitalar de Lisboa (weird way of saying Lisbon’s central medical center, yes we are from Portugal) this treatment will allow Matilde to improve her condition but it does not cure her and her life expectancy still remains up to 4 years old best case scenario.
We have manage through some friends to get this to the public and my sister was on tv yesterday and it’s all over the news, every major player from Benfica and all the influencers and bloggers have come to the rescue but we still have a long way to go.
Little Matilde os now fighting to breath I beg you please to spread this all over for her and for all the children that have the same fatal condition.
Please help us save my niece
The articles all over Portugal below:
https://www.jn.pt/nacional/interior/matilde-tem-dois-meses-e-precisa-do-remedio-mais-caro-do-mundo-para-sobreviver-11046362.html
https://tvi.iol.pt/vocenatv/dicas-curiosidades/instant/extra/conheca-a-bebe-que-precisa-de-dois-milhoes-de-dolares-para-sobreviver
Her Facebook page also
https://www.facebook.com/Matilde-uma-beb%C3%A9-especial-320629462202840/
We are running out of time please please help us ✨? thank you
vickybaez62
Son hispanos y nunca hablan Español que tristeza y tienen tanto seguidores hispanos que ni siquiera les entienden y no les importa... siguen en lo mismo yo admiro mucho a esas personas que aún sabiendo dos idiomas o tres o cuatro siempre se dirigen a sus fanáticos en Español e Inglés.
gracias_altaracia_lara
Alex portese bn párese un niño grande paisano lo quiero y no quisiera verlo como mi padrastro q sele fue la juventud y quedó solo en su vejez, le digo esto cómo un hijo y paisana, sabemos q no todo q se dice es siendo.Dios me lo bendiga a usted y toda su familia ❤️
stephaniepenaslavik
I wish you would do a mommy makeover show. I am trying so hard to get fit. My husband wants me to wear sexy outfits, but I don't have the confidence. It is so hard, especially when I don't have the support.
trevoralley1
DON'T FORGET TO VOTE AARON JUDGE, GIO URSHELA, DJ LEMAHIEU, GARY SANCHEZ, LUKE VOIT, AND GLEYBER TORRES FOR THE MLB ALL-STAR GAME IN CLEVELAND!!!
laurajbrain
Hey Alex! Hoping you’ll be at the stadium tomorrow for BP, I need your autograph for my 09 WS winners card collection! ????
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