Nicole Mejiaのインスタグラム(nicole_mejia) - 11月8日 07時03分
When I was 3 and my older sister 5, we were diagnosed with a disease called cystic fibrosis. CF is a rare, life-threatening inherited disease in which the over production of mucus blocks the airways and digestive system.
We grew up having daily respiratory therapy, breathing treatments 2-4 times per day, and taking medicine that I can still taste.?
A few months ago, my sisters and I spoke to my mom about how the diagnosis affected her and my dad.
Putting myself in their shoes all but ripped my heart out.
Hearing about their grieving process and the support system that got them through it. Remembering the healing masses they would take us to and how my mom would spend every morning in the chapel, praying.
The annual bike ride that my Papi would do each year to raise money for CF research and treatment, and how Nat and I would draw all the donators pictures.
We talked about the people who played irreplaceable roles in our childhood-all of whom are still part of our lives today.
We reminisced about the time we spent together as a family and how strong my parents were to have raised us as normal kids, knowing that their time with us was limited.
CF is non-curable, but my sister and I are both CF free today.
Now, I don't want to make this about the belief in God or miracles because I know that spirituality is a personal journey.
This story is about the importance of support and community at every level, and our responsibility as human beings to give back where and when we can.
Ever since that convo, I can't help but think, "what better way to celebrate another year of life than by helping someone else fight for a chance to keep theirs?"
My past is what motivated me to hold "Give Back in Masks" on November 19th. Yes, we are celebrating my bday and the 3rd anniversary of @getfitandthick. But what we're really doing, is becoming a support system for the children, parents, and family members of the patients at @stjude's
I'm inviting every single on of you to spend the evening with me in honor of a cause that is so very dear to my heart.
This will be a night of dancing, drinks, & music at the AC Hotel Masquerade style!
Tickets are available in my bio❤️
#givebackinmasks
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